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This Adventure, Our Life: Little Layla Grace

Monday, March 1, 2010

Little Layla Grace


I can not stop thinking about Layla Grace.  I keep praying for her comfort, as well as her family.  She is dying right now of Stage 4 Neuroblastoma.  Parents should not have to watch their children die, it is just not right.  I will never never understand this.  It breaks my heart to hear her story, she has touched so many peoples lives in her short time here.  This is a heartbreaking as well as incredible story of a strong little girl.  There was a post a little while ago, that really touched my heart, ever since than I just can not stop thinking about it.  It made me stop and appreciate every single thing I have, especially my little Bailey.  Often we get caught up in the stress of life, but life itself should be our focus.  Check this post out:  http://laylagrace.org/448_sleep-valentines-and-regrets.html  .  

In sharing her story of her life they are trying to raise awareness about Neuroblastoma.  Please keep her in your thoughts and prayers.  


Here is part of her story from Layla's website:  http://laylagrace.org/




Layla has always been a healthy child, 80th percentile for weight, a great eater, a great sleeper. She is sweet as pie and a little cuddle monkey (she won’t let you put her down!). She has a very advanced vocab for her age which really helps us manage her pain and give her what she needs as her care continues.

Layla had a great 15 month checkup. At around 16 months her sleep habits and appetite started to change and she started to become more irritable. Mid March appetite began to decrease. At the time we thought we were dealing with a “picky eater”. Beginning of May Layla woke up one morning with a swollen eye. We took her to the doctor and she was treated for an ear infection and the doctor said the swelling was just a result of the ear infection. At the same time we noted that her belly was hard and somewhat distended. She had not had a bowel movement for a few days and we were concerned that she was becoming constipated.

The next day we took her to the pediatrician who put her on Mirilax over the weekend and told us to call back Monday. By Monday morning she was not eating at all, still no dirty diaper, her activity level had decreased and was rubbing her belly and lower back and saying “owie”.
Our pediatrician referred us to a GI specialist to see why she was so constipated and wasn’t eating. On Thursday May 7th as we sat in GI specialists office expecting to be told that Layla would need some kind of treatment for constipation we instead hear words like “Cancer” and “Leukemia”. A series of X-rays and tests were ordered and we were sent home to wait on the results.

That evening about five minutes after we walked in the door we got an urgent call from the GI specialist telling us that the test results were in, that things were not good and that we were to bring Layla into the ER immediately and that a team of doctors would be waiting for us.
Layla has a massive cancerous tumor (Stage 4 Neuroblastoma) in her abdomen. It extends from above her left kidney, around her side, over her belly and wraps around her aorta. In addition, the cancer is in her bone marrow.

Our sweet Layla went from normal happy and healthy to lethargic, in pain, and skin and bones in a matter of a week and a half.


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1 Comments:

At March 3, 2010 at 2:34 PM , Blogger Suzanne Jeanette said...

Just read this, and I had to go give my boys a hug. I can't even bear to imagine how horrible this families experience has been. I feel so lucky to have a healthy family.

 

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